JAN 16, 2018 2:56 PM PST

How Does Childhood Cancer Affect Siblings?

WRITTEN BY: Julia Travers

It is sometimes said that when one family member is told they have cancer, an entire family is diagnosed with the disease because the experience becomes so prevalent in their lives. While it may seem obvious that young siblings would be impacted by a brother or sister’s cancer diagnosis, it is a surprisingly under-studied and under-treated phenomenon. A group of clinical psychologists from Nemours Alfred I. duPont Hospital for Children (“Nemours”), a pediatric hospital in Wilmington, Delaware, is in the process of studying how youth cope with the cancer diagnosis of a sibling and how they struggle or adjust as adults in regard to this early traumatic experience.

Siblings in a hospital, credit: public domain

The study has been going on for two years and has already recruited 100 families in the U.S., Nemours Senior Research Scientist Melissa Alderfer tells U.S. News.

Families who are enrolled have check-ins with the scientists every six months for the first two years after a child is diagnosed. Siblings between the ages of eight and 17 and their parents are included in the survey, which aims to determine how many youths end up with a type of post-traumatic stress disorder (PTSD) and how and why they cope in different ways later in life. Early findings show about 60 percent of the children demonstrate PTSD symptoms and it is believed some will have ongoing behavioral and emotional difficulties. Previous research has shown only about half of the major pediatric hospitals in the U.S. and Canada offer support services for siblings.

The Andrew McDonough B+ (Be Positive) Foundation, the largest provider of financial assistance to families of kids with cancer in America, gave $100,000 to Nemours for this study. It is also considering giving the hospital additional funding. The group was founded by the parents of Ali and Andrew McDonough. Andrew died of leukemia in 2007 in the arms of his sister, Ali. Like many siblings in families struggling with childhood cancer, Ali took on extra responsibilities around the house. She had just gotten her driver’s license when her brother was diagnosed and quickly started driving herself to school and buying groceries for the family.

"I knew that we were going to have to neglect her for that time and it made me feel horrible," her father, who is president of the B+ Foundation, says. Many young people in this scenario also report taking over chores such as meal preparation.

One sibling told Alderfer they "understood that a part of their parents' heart for them had to go to the child with cancer."

Siblings of children with cancer have reported feeling a range of emotions including guilt, isolation, jealousy, sadness, fear and anger, among others. The Nemours team is exploring what factors affect kids’ reaction to and emotional processing of this challenging situation and whether demographics, parental relationships to the child, parental upset, and extended family or non-family support levels play a role. Alderfer says she and her colleagues hope to enroll another 100 families during 2018.

About the Author
  • Julia Travers is a writer, artist and teacher. She frequently covers science, tech, conservation and the arts. She enjoys solutions journalism. Find more of her work at jtravers.journoportfolio.com.
You May Also Like
AUG 07, 2020
Cancer
Immune-Related Genes as Prognostic Biomarkers
AUG 07, 2020
Immune-Related Genes as Prognostic Biomarkers
Cancer is one of the most persistent and hardy diseases. Cancers often develop the ability to suppress the immune system ...
AUG 14, 2020
Cancer
Controlling Tumor Blood Flow to Increase Therapy Effectiveness
AUG 14, 2020
Controlling Tumor Blood Flow to Increase Therapy Effectiveness
Nowadays, most cancer drugs target a protein or inhibit a critical cellular process. Modern therapies have varying level ...
OCT 07, 2020
Cancer
Delivering Cancer Drugs to Osteosarcoma with Nanoparticles
OCT 07, 2020
Delivering Cancer Drugs to Osteosarcoma with Nanoparticles
Over the years, cancer researchers have struggled not just with drug and diagnostic design, but with drug delivery. The ...
OCT 12, 2020
Drug Discovery & Development
Researchers Solve Key Problem for Cancer Immunotherapy
OCT 12, 2020
Researchers Solve Key Problem for Cancer Immunotherapy
Cancer immunotherapies are becoming increasingly promising as a standard-of-care treatment. However, despite their promi ...
OCT 16, 2020
Cancer
Chronic jet lag raises cancer risk
OCT 16, 2020
Chronic jet lag raises cancer risk
We all know how horrible it feels to have a bad night of sleep. That feeling is only intensified with jet lag because ou ...
OCT 28, 2020
Cancer
Protecting the Head and Neck from Off Target Radiation
OCT 28, 2020
Protecting the Head and Neck from Off Target Radiation
Radiotherapy alone or with chemotherapy is the go-to treatment for head and neck cancers. Unfortunately, head and neck t ...
Loading Comments...