MAY 11, 2016 3:00 PM PDT

Genomics in the Clinic - Medical Ethics and Policy

Speaker
  • Leon Jaworski Professor of Biomedical Ethics, Director, Center for Medical Ethics and Health Policy, Baylor College of Medicine
    Biography
      Dr. McGuire is the Leon Jaworski Professor of Biomedical Ethics and Director of the Center for Medical Ethics and Health Policy at Baylor College of Medicine. She is nationally recognized for her research on ethical, legal, and social issues in biomedicine, with a particular focus on research ethics and the clinical integration of emerging genomic technologies. Currently, she is studying issues related to genomic data sharing, the policy implications of emerging business models for next generation sequencing, and the ethics and psychosocial impact of whole genome and whole exome sequencing. Her research is funded by the NIH-NHGRI, NCI, and NICHD. She has served on the National Advisory Council for the Human Genome Research Institute and is currently a member of the Advisory Committee for the Greenwall Faculty Scholars Program in Bioethics. Dr. McGuire is the recipient of two Fulbright & Jaworski LLP Faculty Excellent Awards for Teaching and Evaluation and Educational Leadership. She received her B.A. from the University of Pennsylvania, summa cum laude, her J.D. from the University of Houston Law Center, summa cum laude, and her Ph.D., with distinction, from the Institute for Medical Humanities at the University of Texas Medical Branch.

    Abstract

    It is estimated that by the end of this year more than 1 million people worldwide will have had their genome sequenced. Genomic sequencing is increasingly being integrated into clinical care, in both adult and pediatric populations. In this talk I will discuss two major ethical and policy issues related to the clinical integration of genomics: (1) the psychosocial risks of genomic testing, and (2) the need for robust databases to ensure accurate and useful variant interpretation.

    Learning Objectives:

    By the end of the session, participants will be able to:
    1.    Identify ethical and policy issues related to the clinical integration of genomics.
    2.    Discuss the importance of data sharing for genomic medicine.


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