MAY 10, 2018 7:30 AM PDT

Keynote Presentation: An Introduction to the All of Us Research Program

Speaker
  • Policy Director, All of Us Research Program, National Institutes of Health
    Biography
      Katherine D. Blizinsky, Ph.D, is the Policy Director for the All of Us Research Program. A neuroscientist and geneticist specializing in research on mental health and cognition, with a focus on health disparities, Dr. Blizinsky completed her doctoral work at Northwestern University. She is an alumna of the American Society of Human Genetics/National Human Genome Research Institute (NHGRI) Genetics and Public Policy Fellowship and has policy experience with both the legislative and executive branches. On Capitol Hill, Dr. Blizinsky worked with the Senate Health, Education, Labor, and Pensions (HELP) Committee under Ranking Member Patty Murray, where, among other roles, Dr. Blizinsky participated in the drafting and negotiation of the 21st Century Cures Act, which became law in 2016. Following her time on the Hill, she moved to NIH, where she held simultaneous appointments as Policy Advisor to the All of Us Research Program-concentrating on issues of data access, informed consent, and participant privacy-and as an Intramural Research Fellow with the NHGRI Health Disparities Unit under Vence L. Bonham. In addition to her current positions with All of Us and continued work with the Health Disparities Unit, Dr. Blizinsky is an Assistant Professor in the Department of Neurology at Rush University and on the faculty of the Rush Alzheimer's Disease Center in Chicago, IL.

    Abstract

    The All of Us Research Program is a historic effort to gather data from one million or more people living in the United States to accelerate research and improve health. By taking into account individual differences in lifestyle, environment, and biology, researchers will uncover paths toward delivering precision medicine to all Americans. Today, we will discuss the program to date, considerations taken into account during its inception, lessons learned during the beta testing phase, and its trajectory into the future.


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